About...
| RETT SYNDROME |
Rett is an Autism Spectrum neuro-developmental disorder caused by a mutation
on the X chromosome and seen primarily in females. Those diagnosed with Rett
may be unable to walk, talk or use their hands purposefully. Many suffer from other
complications including seizures, scoliosis and breathing abnormalities. more
on the X chromosome and seen primarily in females. Those diagnosed with Rett
may be unable to walk, talk or use their hands purposefully. Many suffer from other
complications including seizures, scoliosis and breathing abnormalities. more
| INTERNATIONAL RETT SYNDROME FOUNDATION |
IRSF is a non-profit 501(c)(3) corporation. The core mission of IRSF is to fund
research for treatments and a cure for Rett syndrome while enhancing the overall
quality of life for those living with Rett syndrome by providing information,
programs, and services.
www.rettsyndrome.org
research for treatments and a cure for Rett syndrome while enhancing the overall
quality of life for those living with Rett syndrome by providing information,
programs, and services.
www.rettsyndrome.org
ONCE EVERY 2 HOURS
OCTOBER 1999
FEBRUARY 2007
4 STAR CHARITY RATING
OCTOBER 2009
Scientist discover the gene
that causes Rett Syndrome.
that causes Rett Syndrome.
Dr. Adrian Bird REVERSES
Rett Syndrome in a mouse
model. This study suggests
Rett and related disorders
are reversible even in the
late stages of the disease.
Rett Syndrome in a mouse
model. This study suggests
Rett and related disorders
are reversible even in the
late stages of the disease.
IRSF kicks off the new Research
to Reality campaign with Chair
Clint Black and a $1Million
Matching Gift program. The goal
is to accelerate the progress of
crucial research, and bring it's
promise directly to our children.
to Reality campaign with Chair
Clint Black and a $1Million
Matching Gift program. The goal
is to accelerate the progress of
crucial research, and bring it's
promise directly to our children.
Some where in the world. once
every 2 hours a baby girl is born
with Rett Syndrome.but most
people have never heard of it
every 2 hours a baby girl is born
with Rett Syndrome.but most
people have never heard of it
| FACTS & INFORMATION |
| SoCal Rett Family Picnic & Strollathon |
 | |  | |  | |  | |  | |  |
| A FEW OF OUR SoCal ANGELS |
| IRSF's "Together We Are Better" video |
The Strollathon is the signature event of the International Rett
Syndrome Foundation. It is a fun-filled family event which raises crucial
communities across the country and even worldwide. The hard work and
dedication of families country-wide has helped IRSF to substantially
increase the dollars raised and add more Strollathons to the calendar
each year to help further our mission.
Syndrome Foundation. It is a fun-filled family event which raises crucial
communities across the country and even worldwide. The hard work and
dedication of families country-wide has helped IRSF to substantially
increase the dollars raised and add more Strollathons to the calendar
each year to help further our mission.
| STROLLATHON |
SPRING 2011
Human clinical trials begin with the
IGF-1 study which represents the
first potential disease-modifying
therapy to be tested in RTT patients.
IGF-1 study which represents the
first potential disease-modifying
therapy to be tested in RTT patients.
AUGUST 2011
IRSF announced that it is awarding
over $700,000 to support nine
cutting-edge projects that aim to
accelerate translational research to
develop treatments for Rett
syndrome..
over $700,000 to support nine
cutting-edge projects that aim to
accelerate translational research to
develop treatments for Rett
syndrome..
